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MuscularAtrophy news

Health Ministry urged to approve drug to help patients with spinal ...

The Star Online - Jun 11, 2018
PETALING JAYA: The Health Ministry should approve a drug named Spinraza that can help people with spinal muscular atrophy (SMA), said WeCare Journey ...

Moorhead girl with spinal muscular atrophy will roll through benefit walk--thanks to caring neighbor

Valley News Live - Jun 9, 2018
She was diagnosed with spinal muscular atrophy at 18 months. "It affects all the muscles and it does get worse," her mom, Roxanne Castillo, told Valley News Live. But Castillo says that doesn't slow her down. "Oh she's a firecracker, right?” Castillo said.

Targeting Essential Amino Acids Seen to Ease Muscular Symptoms of SMA in Mouse Study

SMA News Today - Jun 11, 2018
Targeted therapies or dietary supplements that work to improve the metabolism of certain molecules in muscle cells may slow the progression of spinal muscular atrophy (SMA), results of an early study in mice show. The study, “Interventions Targeting ...

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Muscular Atrophy videos

Spinal muscular atrophy - causes, symptoms, diagnosis, treatment, pathology

What is spinal muscular atrophy (SMA)? SMA's an autosomal recessive disorder that causes alpha motor neurons in the spinal cord to die, resulting in muscle ...

Growing Up With Spinal Muscular Atrophy

Noël Ratapu was born with a condition that means she is gradually losing muscle strength and mobility. Now 15, Noël has found her voice and identity in the ...

Siblings with Spinal Muscular Atrophy (High School Lunch with a Disability)

Noelle is a high school student who is diagnosed with spinal muscular atrophy. Mikey, her older brother, has the same diagnosis.As Noelle faces the difficulties ...

A first-ever therapy for spinal muscular atrophy

Nervous and kind of excited,” 14-year-old Malorie Fox prepares to receive a new treatment.

Families of Spinal Muscular Atrophy Canada

A short look at the lives of families affected by SMA - kids participating in outdoor fun - and expressing hope for their futures. An HD version is also available for ...