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MuscularAtrophy news

Here's why pharma is happy to help foot the bill for this $750000 drug

Washington Post - Jun 9, 2017
Max's rare, life-threatening disease, spinal muscular atrophy, required him to use a wheelchair and robbed him of muscles he needs to smile and swallow. Spinraza, developed by the Massachusetts biotech company Biogen, had helped other children with ...

Spinal Muscular Atrophy treatment Spinraza facing roadblocks at hospitals

WXYZ - Jun 6, 2017
The disease is Spinal Muscular Atrophy (SMA), a genetic abnormality that results in a steady loss of muscle function and inevitably a dramatically shortened life span. The drug is Spinraza, approved by the FDA on December 23, 2016. 7 Action News anchor ...

How motor neurons falter in spinal muscular atrophy

Futurity: Research News - May 18, 2017
Scientists have discovered a chain of events in which the mutation that causes spinal muscular atrophy disrupts motor neurons and their communication with muscle. The discovery follows US approval in December of the first treatment for the disease that ...

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Muscular Atrophy videos

Spinal muscular atrophy - causes, symptoms, diagnosis, treatment, pathology

What is spinal muscular atrophy (SMA)? SMA's an autosomal recessive disorder that causes alpha motor neurons in the spinal cord to die, resulting in muscle ...

Growing up with Spinal Muscular Atrophy

Maija Fredrichberg has Spinal Muscular Atrophy. Her muscles are slowly deteriorating and her parents were told she wouldn't live past her fifth birthday. Maija is ...

Strength before spinraza treatment in type 3 adult spinal muscular atrophy

Trever Bacher with type 3 SMA going to start treatment spinraza. Showing his current strength and weakness. HD video.

Families of Spinal Muscular Atrophy Canada

A short look at the lives of families affected by SMA - kids participating in outdoor fun - and expressing hope for their futures. An HD version is also available for ...

Video on Spinal Muscular Atrophy ver 1

Video on Spinal Muscular Atrophy. ver 1.